I've titled the blog, "what to say?" because at the moment, I really don't know what to say. We got the results of Eden's MRI this week. To back up a little, we had the MRI done to recheck her spine from the surgery she had done in October (to release the tethered cord). The spine looked great - everything healed nicely. I had also asked Dr. Fuchs at her last appointment if we could do an MRI of her brain as well since there was so much controversy in her medical records of whether or not she did in fact have Dandy Walker Syndrome. Some of her records said yes, and then some said no (one of the benefits of working at her pedi's office - I get to see the records Duke sends first hand!) With her developemental delays too, I have wondered if an MRI would give us any light as to why she has had them - we've gotten so many theories as to why she has delays. Well, Dr. Fuchs siad it was a good idea to have the MRI done, so he agreed. Well, the MRI showed that she does in fact have hydrocephalus (extra fluid in her ventricles in the brain). We (and Dr. Fuchs) were quite shocked as most kids with hydrocephalus show clinical symptoms such as seizures, enlarged head circumference, downward gazing eyes, etc - none of which Eden shows. This could explain why she has been delayed at meeting milestones and things *could* get better after the surgery she is going to need. I say *could* because doctors of course can't promise anything - especially when it comes to the brain.
5 weeks ago