Dr. Fuchs came by this morning and gave me good news! Her ICPs were stable all night and he thinks that the high pressures yesterday were "faulty". Her MRI looked great and another doctor just came in to take the drain out.... Can I just take a minute to tell you know STRONG my little girl is:) The doctor pulled a tube out of her brain and stitched up her scalp and she didn't even cry - just kept sucking away on that passy and looking at me... I love this kid!
They had to sedate her for the MRI - so I sense alot of sleeping going on today... probably for both of us... though I will say I did sleep well last night (thanks to those of you who prayed I would get some sleep!). We had a wonderful nurse last night who was able to work in the dark and didn't have to change her diaper at 4am:) Maybe we'll get her back tonight!
The plan is to go home tomorrow morning (we heard talks of today... but I don't forsee that happening). I'm so ready to be home... 5 days has been long enough! I was thinking this morning of how ready I am to get out of here... and was quickly reminded of all my sweet patients on the bone marrow unit who spent months in this place:( I have a new appreciation for all those families!
Since so many of you that read our blog are still praying for us, I thought I'd take a minute to ask you to pray for my friend Heather... she's *overdue* with little Charlotte and I'd love for Charlotte to be born on my birthday!
5 comments:
Oh, I am so happy to hear the good news! I know you could not have received a better birthday gift than knowing your daughter is doing so well. God is good!!
Stephanie, I am so excited to hear the news. Happy Birthday to YOU!!! You are a special mom and you need to enjoy your special day too. What a blessing you and Josh have created! That is truly a miracle! Keep posting the pictures shed a whole new light on things from here! She is PRECIOUS! We all love you guys and are continuing to keep you in our prayers! Love ya Mylinda
PaPa said...
Wonderful news about Eden. The Lord has answered our prayers again. She is such a sweet little girl, and you are such a sweet big girl. And Happy Birthday, one you probably never forget.
Great Grandma and I love you all.
Hi
Steph , Josh and dear Eden,
Was delighted to get your latest Blog.
Sure have had you all on our prayer list, And what a birthday gift for you Steph.
Love you all,
Grandma and papa
Stehpanie, I'm so glad to hear the good news! Praying that you all will be home soon, I know how hard it can be to get rest there. Eden is amazing! Praise the Lord for no shunt!!! I can't wait to see you all again. Please don't hesitate to call us if you and Josh need anything. Love, Jenny R.
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