Doing Well

I just got back from seeing Eden and am about to go grab some lunch (umm... hospital food). Eden is doing so well - she has been taken off the breathing machine and is breathing well on her own. She seems to be uncomfortable (who wouldn't be considering what they did to her!) and they are trying to keep her pain managed with some IV pain meds and tylenol. As she keeps doing better, they will get rid of some of the other tubes and hopefully be sent to the floor some time soon. We may be in the PICU another night because the pediatric floor is completely full and they don't have a bed for her there. Please keep praying for her - for healing, comfort and strength.

Steph

The Waiting Game

So - I'm still waiting.... I am so anxious to see Eden. I have not gotten to go back yet this morning becuase the doctors are still making rounds and the baby next to her had to have an emergancy bedside procedure so they wouldn't let any family back there. I will post again after I get to see her and know what the plan is.

Its late and I am exhausted.... I think I decided that its harder being a mom than it is being a nurse. Sitting in the hospital with Eden and watching what she has to go through is much harder than any 13 hour shift I ever endured here. She is such a brave little girl and I couldn't be more proud to be her mother. She has taught me so much and I know that the Lord is going to continue to use her in my life to teach me so many things. I have been sitting with her in the PICU for the past few hours. She has been drifting in and out of sleep, but has opened her eyes enough to look at me and Josh - such a comforting thing. While she has been sleeping, I have been trying to keep myself occupied with things other than medical information - so what better to turn to - the trusty Bible:) I love how the Lord gives me these moments to sit and meditate on His Word and pray Scriptures over Eden. I came across a few in Psalms tonight that I wanted to share. 

"I will remember the deeds of the Lord, yes, I will remember your wonders of old. I will ponder all your work and meditate on your mighty deeds. Your way, O Lord, is Holy. What god is great like our God. You are the God who works wonders, you have made known your might among the peoples." Psalm 77:11-14

"But You, O Lord, are a God merciful and gracious, slow to anger and abounding in steadfast love and faithfulness. Turn to me and be gracious to me; give Your strength to Your servant." Psalm 86:14-16

"When I thought, 'My foot slips' Your steadfast love, O Lord, held me up. When the cares of my heart were many, Your consolations cheer my soul." Psalm 94: 19

May we continue to always give thanks for Eden's life and the miracles that the Lord continues to do. Thanks again for all your prayers. More updates tomorrow - and MAYBE some pictures!:) 

Steph

Praise the Lord

Praise the Lord for His goodness. Eden is out of surgery and did great. Dr. Rice just came out and told us that things went well and Eden is going fine. He said it was probably there since birth, but they still don't know why it was not found until now. He was pretty sure that this plays a big factor in her decreased appetite and feeding issues and said that once her intestines start to wake up, we should see some improvement in her appetite. I am so thankful for the Lord's mercy on her and for answering our prayers this way. He continues to be faithful and Eden continues to be my constant reminder of the Lord's goodness. We'll still keep you guys posted. She's in the PICU and we will get to see her soon.

Stephanie

Update

They just called to let us know that they have started the surgery and Eden is doing well. Please keep her in your prayers for the next few hours. Thanks again.

Stephanie

OR

We're now in the pre-op waiting, surgery should be soon. Thanks again for praying for Eden.

Steph

Unplanned Surgery

These past few days have been absolutely crazy.... but I wanted to update all our blog family and ask you to pray for our little girl. We ended up at Duke on Friday for what we thought was a stomach bug. Eden got some IV fluids and was send home with zofran - a medicine to help settle her stomach. They told us to come back if she kept vomiting - well, vomiting she did. So we came back last night..... when we got here, her oxygen saturations were low so they did a chest x-ray. Turns out, she has a diaphragmatic hernia - she has a hole in her diaphragm and her intestines and spleen have moved up to where her lung is suppose to be - causing her not to be able to breathe as well (which explains the "grunting" that she has been doing the past week - which I thought was just discomfort of some sort). The doctors are pretty stunned as this is not something they typically see on a healthy 6 month old. From what they have told us, this is usually only found at birth (b/c the baby cannot breath) or after a major trauma (like a car accident). They went back over all her scans she has done here and it was not there on previous scans. They think she may have always had a small hole in her diaphragm and something has now caused her bowel and spleen to push up through it. This may also explain a lot of her issues feeding. So we were admitted to the pediatric unit and are scheduled for surgery this afternoon. We are unsure of the time yet, but will update as soon as we know anything else. This is pretty major surgery and it may last 3-4 hours. She will have to be in the PICU (intensive care unit) for at least one night. She will then be here at Duke for at least a week. We are pretty stunned at this point as we thought we were just bringing her in for a stomach bug and dehydration, but we are confident that the Lord is with her and will bring her through. Please pray for her little body - for strength and comfort. Please pray for the doctors (Dr. Rice) that will be performing her surgery that he will have stable hands and the knowledge to know what is going on with our precious little girl. We will update throughout the day and week, so please check back. 

Stephanie, Josh and Eden.